The Myelin Repair Foundation Blog
Take 12 minutes for the MRF
Scott Johnson, Myelin Repair Foundation President and Founder … waiting for a cure since 1976 This week, we released the third Myelin Repair Foundation video that has been produced since our founding in 2003. For those who have seen videos #1 and#2, you will see a marked contrast in this third video....
Too Much with Too Little
When scientists talk about their research on diseases like Parkinson’s, Alzeheimer’s or multiple sclerosis, it seems that the only thing that people want to know is, “When is there going to be a cure?” Scientists, in return, answer with matter of fact figures like 15, 20 or...
My MS Story
Every week our good friend and MRF volunteer, Gali Hagel, writes a phenomenal blog about her personal experiences with MS. Her advice is priceless and holds our community together. So this week we wanted to bring back one of her old posts. If you have not read every week, here is your chance to...
Spotlight: The Boy Who Cried MS
Do you remember the blog post called A Match Made in Myelin about the couple, Stephen and Darla, who met while volunteering for the MRF? Now Stephen has his own blog called The MS Champion. Below you will find his first post. Feel free to read it here or continue to his blog here. The Boy who Cried...
Spotlight: Tour of Utah and the Ride Project
Courtney Carver Supporting the MRF Previously we blogged about Courtney Carver’s efforts to raise money for the Myelin Repair Foundation. This past month she put together a booth for a biking event to publicize the Myelin Repair Foundation. Here’s Courtney’s update on her project: ...
What are drug targets?
A drug target is usually a small molecule that is specific to a disease condition. These two cartoon characters are line drawn molecules. If you click through the Myelin Repair Foundation’s website, you will eventually happen upon the term “drug target.” And though these two words might seem straight...
Things I Wish I’d Known When I Was Diagnosed
Things I wish I’d known when I was diagnosed: There is life after diagnosis. It will be different, some of it will be hard, but much of it will be great. You can take your time learning about MS. If there is something that scares you, ask a friend to read up on it and educate you. It can...
A Collaborative Effort to Find Biological Markers
Neil Buckholtz, chief of the Dementias of Aging Branch at the National Institute of Aging, in the National Institutes of Health. The New York Times reports on a successful collaboration, the Alzheimer’s Disease Neuroimaging Initiative, which created a platform for sharing data on the biological markers...
For A Change of Pace…
…I’d like to tell you a story about one evening in the life of an MS patient. There’s no real moral to the story—at least I’m not sure what it is if there is one, other than perhaps to say “m-u-l-t-i-p-l-e s-c-l-e-r-o-s-i-s” and not “MS” when speaking...
Behind the Scenes of the New MRF Video — Interview with Gali Hagel
Hopefully you have seen the MRF’s new video that was released earlier this week (and if not, you can check it out here). Now you can see what the video means to one of our regular bloggers, Gali Hagel. Gali shares with us about how the video will effect the MRF community and what it means to...
MRF Gets Awarded Second Patent
This month the Myelin Repair Foundation received news of its second US patent. The patent, entitled “Animal Models for Demyelination Disorders” was granted to Brian Popko and Wensheng Lin as the 7,754,941 patent in the United States. Our first patent, number 7,423,194, covered compositions of matter,...
Creating New Drugs Is Getting Harder and Harder
Via Peggy Tierney’s Tweet , The Atlantic’s Megan McArdle dissects the problem of creating new treatments in our broken medical research system in the article “No Refills”. Her article goes beyond finger-pointing at the FDA or pharmaceutical companies and tackles some of the...
Travelling Through: Bridging The Gap Between Health and Illness, “Us” and “Them”
When I left the office of the first doctor who said to me, “You have MS,” I called my best friend from my parked car. I hit the steering wheel over and over as the pins and needles in my hands sparkled and sprayed the dashboard. I cursed and cursed, and then cursed again and again and...
What, Me Worry? Stress and MS
What, me worry? What do any of us have to be stressed about? Give me a break. And that goes for all of us—not just those of us with MS. But, there are ways to deal with it constructively. To say I’ve always been a worrier would be an understatement. At the age of eight I stayed...
Follow Friday
At the MRF, we are constantly reading other blogs about MS, by people with MS and for people with MS. Not wanting to keep our favorites to ourselves, on Fridays we will be posting links to some of the articles and blogs we find interesting throughout the week. Let us know what you think or comment...
Chicago MRF Supporters Play Another Winning Game
This past Monday, in the Windy City, MRF supporters Paul Purcell, Phil Purcell and Lester Knight, held the annual Drive for Breakthroughs golf tournament, an event that has been one of the most successful fundraisers for the Myelin Repair Foundation. Paul Purcell, his father, Phill Purcell, Lester Knight...
Two Milestones Completed
This month, the MRF achieved two very important milestones: we completed matching a $10 million challenge grant, and we were awarded our second patent! Completing the challenge grant was no small feat in an economic downturn that has seriously impacted philanthropic giving. I can only say that those...
Our Friend, MS Dreams, Has A Chance To Win $25,000 to Make MS Dreams Come True
Here at the MRF, it seems like our community is always expanding and growing to incorporate individuals who share our goal. And one of the newest groups to join the MRF community is MS Dreams, a nonprofit organization that is also fighting for people with MS. Multiple Sclerosis Dreams, Inc. based in...
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