The Myelin Repair Foundation Blog
Take 12 minutes for the MRF
Scott Johnson, Myelin Repair Foundation President and Founder … waiting for a cure since 1976 This week, we released the third Myelin Repair Foundation video that has been produced since our founding in 2003. For those who have seen videos #1 and#2, you will see a marked contrast in this third video....
Bob Gregory, Creating Rituals and Making a Difference for the MRF
Chicago MRF Walk Bob Gregory and the Johnnie Walkers, Dr. Steve Miller, and Dr. Brian Popko hosted an incredible MRF walk this past Sunday, May 16th, continuing a tradition started in 1995. “The walk was a really enjoyable experience,” according to Dr. Miller. “To be able to interact with MS...
Are You in an MS Walk, Run or Bike This Year?
On your marks, get set, talk! This summer many of you may be joining thousands of others in MS Walks, Runs, Bikes around the country. It’s a great time to get together with friends and to bring more awareness to multiple sclerosis. If you support the Myelin Repair Foundation you can accomplish...
Volunteer Spotlight: Nicole McGarvey
Nicole McGarvey, the Volunteer Area Director for the Colorado area, has been working for the MRF since early 2006 after she stumbled upon the organization by researching multiple sclerosis on the internet. Since her brother was diagnosed with MS in 2000, Nicole became interested in the MRF and its mission...
Join Our Interactive Webinar This Thursday: A New Model for Drug Development
You are invited to participate in an interactive webinar this Thursday to discuss a drug development model employed by the Myelin Repair Foundation with the potential to cut years from the drug development timeline, saving lives and money. As the nation deals with spiraling...
Keeping Sane While Coping with MS
Volunteer written article by Bob Gregory. He was diagnosed with secondary progressive multiple sclerosis in 1990 and has been volunteering for the MRF since 2003 after being attracted by the Myelin Repair Foundation’s ARC approach in tackling the problems in translational research. He serves as...
Blog & Go to Disneyland or DisneyWorld!
Planning your vacation for 2010? If you and your kids love spending quality time together — while having fun with Mickey Mouse & the gang or going on exciting theme park rides — you should write a blog article for the Myelin Repair Foundation. This year the Myelin Repair Foundation is...
To Start a Movement, Be a Courageous Follower
I found this TED Talk by Derek Sivers, ”Leadership Lessons from Dancing Guy,” last night and wanted to share it with Myelin Repair Foundation supporters: Sivers says: It was the first follower that transformed a lone nut into a leader. There is no movement without the first follower. We’re...
Where Are The Cures?
This month the Myelin Repair Foundation is launching a new web site called Where are the Cures? As our friends and supporters know, the mission of the MRF has always been twofold: first to bring a myelin repair treatment to market as quickly as possible and second to demonstrate the Accelerated Research...
Richard Cooper, Running & Praying for Myelin Repair
Hi, I’m Richard Cooper. Last year, I decided to run a marathon for my sister Kellye, who has MS. She put me in touch with Justine Lam at the Myelin Repair Foundation since this was the organization she wished to support. I’ve been blogging about my journey at Running and Praying. Here’s...
Buy and Sell on eBay for the Myelin Repair Foundation
Just like Broken Feather (Rick Bone & Deb Kelson) you can support the Myelin Repair Foundation when you buy or sell on eBay, with the eBay Giving Works program. Here’s how: Buy You can find whatever you’re looking for on eBay – from baseball cards to new cars and more. When you do, shop...
Guitar for Auction
Rick Bone & Deb Kelson, are two musicians with MS that support the Myelin Repair Foundation. In the past they’ve organized concerts and CD sales to benefit our nonprofit. This time around they are organizing an online auction via eBay to raise money. They are auctioning off the above acoustic...
Thank you Colistie & Daymon Worldwide!
When MRF Evangelist, Colistie Harkness, heard about the opportunity in January to give a speech to her colleagues at the Daymon Worldwide’s Charity Showdown she followed her heart and her instincts and volunteered. This Charity Showdown was sponsored by Daymon, to promote their Toastmasters club,...
Cleveland Clinical Trial to Begin: Mesenchymal Stem Cells Treatment
We recently learned about a Phase I Clinical Trial beginning at the Cleveland Clinic using mesenchymal stem cells. This trial is based on research funded by the Myelin Repair Foundation at the laboratory of Professor Bob Miller’s at Case Western University. Read this article to find out more...
Wear A Ribbon — oops, I mean a Twibbon in Support of the MRF
Here’s an easy way for you to show your support for the Myelin Repair Foundation’s myelin repair research to your friends, family, and colleagues. Add a “Twibbon” — a graphic to your profile photo that says “I [Heart] Myelin.” Twibbon allows supporters to show...
Extraordinary Measures: Don’t Hope for a Miracle. Make One.
Bob Gregory, one of our volunteer area directors pointed us to a new film coming out January 22nd called “Extraordinary Measures” starring Harrison Ford and Brendan Fraser: "Don't Hope for a Miracle. Make One." “Extraordinary Measures” is inspired by the true story of John...
If you wouldn’t mind…
We started the Myelin Repair Foundation blog in August 2009 to encourage more frequent and personal conversations with our supporters and people interested in our myelin repair research and in improving the current system for funding and conducting medical research. Over the past 6 months, we’ve...
I Would Run 100 Miles…. for Myelin Repair
One man did and he crossed the finish line on his last race recently. Dennis Smith’s life was affected by multiple sclerosis early on. His father was diagnosed with MS in 1967, before Dennis was born, and spent much of his time in an assisted living facility while Dennis was growing up. Sadly,...
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