The Myelin Repair Foundation Blog
MS Book Review: The Talent Code on why Myelin Matters
For a long time it never occurred to scientists to study anything other than neurons and axons and dendrites as well as any other electrifying part of the brain. And who could blame them? These nerve cells are interesting. They send sparks of information almost instantaneously throughout the central...
Why is the Myelin Repair Foundation Playing a Game?
Breakthroughs. Innovation. Novel. For many these words are just concepts, but not at the Myelin Repair Foundation (MRF.) In 2002, we embarked upon a very innovative and radical mission. Millions of people are suffering with MS around the world without an effective treatment, and the MRF was formed...
Join Our Interactive Webinar This Thursday: A New Model for Drug Development
You are invited to participate in an interactive webinar this Thursday to discuss a drug development model employed by the Myelin Repair Foundation with the potential to cut years from the drug development timeline, saving lives and money. As the nation deals with spiraling...
Keeping Sane While Coping with MS
Volunteer written article by Bob Gregory. He was diagnosed with secondary progressive multiple sclerosis in 1990 and has been volunteering for the MRF since 2003 after being attracted by the Myelin Repair Foundation’s ARC approach in tackling the problems in translational research. He serves as...
A Hosted Forum on “Where Are The Cures?”
On Tuesday, March 9th at 9:00 am Pacific Time, PatientsLikeMe’s forum will be focused on the topic of our newest initiative Where Are The Cures? , which is concerned with bringing a greater understanding of the barriers slowing the discovery and development of new patient treatments in all diseases. PatientsLikeMe...
Scott Johnson Speaking at Charité Entrepreneurship Summit: March 16, Berlin, Germany
For our supporters in Europe MRF Founder & President, Scott Johnson, will be coming to Berlin to speak to the Charité Biomedical Entrepreneurship Summit in Berlin, Germany on Tuesday, March 16th. He will be speaking on the topics of “How to Enable Medical Innovations: The Role of Foundations”...
Blog & Go to Disneyland or DisneyWorld!
Planning your vacation for 2010? If you and your kids love spending quality time together — while having fun with Mickey Mouse & the gang or going on exciting theme park rides — you should write a blog article for the Myelin Repair Foundation. This year the Myelin Repair Foundation is...
Wear A Ribbon — oops, I mean a Twibbon in Support of the MRF
Here’s an easy way for you to show your support for the Myelin Repair Foundation’s myelin repair research to your friends, family, and colleagues. Add a “Twibbon” — a graphic to your profile photo that says “I [Heart] Myelin.” Twibbon allows supporters to show...
Extraordinary Measures: Don’t Hope for a Miracle. Make One.
Bob Gregory, one of our volunteer area directors pointed us to a new film coming out January 22nd called “Extraordinary Measures” starring Harrison Ford and Brendan Fraser: "Don't Hope for a Miracle. Make One." “Extraordinary Measures” is inspired by the true story of John...
If you wouldn’t mind…
We started the Myelin Repair Foundation blog in August 2009 to encourage more frequent and personal conversations with our supporters and people interested in our myelin repair research and in improving the current system for funding and conducting medical research. Over the past 6 months, we’ve...
Are You an MRF Evangelist?
The interest and support from our social networking communities has been encouraging and rewarding. Your comments, personal donations and the many creative fund raising activities that you have launched on our behalf are nothing short of inspiring. Many of you have asked for tips on how to share...
Poems to Honor our Myelin
Since joining Twitter as @MRF_Justine earlier this year, I’ve been challenging all my new followers to write a poem about myelin in 140 characters or less (Twitter’s format.) I’m amazed to see the creations people have come up with. @MSInCT created cool graphics for some of these...
Big Ideas to Real Outcomes — BIL:PIL 2009
As we wrote earlier, MRF President Scott Johnson will be speaking at the BIL:PIL 2009 Conference in San Diego, CA. (We hope Jonathan has since acquired the lanyards he needs.) BIL:PIL focuses on big ideas everywhere along the healthcare continuum: from medical research to preventative medicine, to...
And the winner is…
Jan Christensen for sharing her experience with the Patients Like Me support site after we asked our readers about their favorite patient support community last week: When MS was first mentioned to me, I started to research it on the internet. I found PLM in early 2008. On PLM I learned what to ask...
Our Researchers Want to Hear From You
The MRF will hold its Annual Research meeting in a few weeks. Dozens of scientists will fly in from around the country to share their latest research with their colleagues. Our scientists are academic superstars who have devoted their careers to answering the most complex scientific questions about...
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