The Myelin Repair Foundation Blog
For A Change of Paceβ¦
β¦Iβd like to tell you a story about one evening in the life of an MS patient.Β Β There’s no real moral to the story—at least I’m not sure what it is if there is one, other thanΒ perhaps to say “m-u-l-t-i-p-l-e Β s-c-l-e-r-o-s-i-s” and not “MS” when speaking...
A Match Made in Myelin
Darla and Stephen found each other through the MRF Born and raised in a small town in Arkansas, Stephen worked as a computer technician. Up north, just outside of New York City, Darla lived and breathed music, playing the piano, viola, guitar while she sang. In most cases, getting diagnosed with MS...
To Start a Movement, Be a Courageous Follower
I found this TED Talk by Derek Sivers,Β ”Leadership Lessons from Dancing Guy,”Β last night and wanted to share it with Myelin Repair Foundation supporters: Sivers says: It was the first follower that transformed a lone nut into a leader.Β There is no movement without the first follower. We’re...
Guitar for Auction
Rick Bone & Deb Kelson, are two musicians with MS that support the Myelin Repair Foundation. In the past they’ve organized concerts and CD sales to benefit our nonprofit. This time around they are organizing an online auction via eBay to raise money. They are auctioning off the above acoustic...
Happy Thanksgiving from the Myelin Repair Foundation
Thanksgiving: a joyous holiday that is today synonymous with turkeys, pumpkin pie, and creating a new belt notch or showing up to dinner in stretchy pants. Outside of its historical and food related connections, the true meaning of Thanksgiving for many lies within its name – giving thanks. For...
What Does an MRF Supporter Want for the Holidays?
Some of our awesome Myelin Repair Foundation supporters helped create this video to share what they want for the holidays with friends and family. Please watch, enjoy and share with your friends and family.
The winner of the Myelin Poem contest is…
Diane Standiford Diane Standiford from the blog A Stellarlife! Β Her winning myelin poem is: Myelin, sweet Myelin Canβt you feel my impulse cominβ? My nerves are cold without you Myelin, my leg wonβt lift without you Please come back and wrap around Oh, how I miss you, Myelin Diane was Dx’edΒ with...
Paul Paez: Be Impatient, Unreasonable, and Undeterred
Multiple sclerosis (MS) is a particularly frustrating illness because it affects the Central Nervous System (CNS); thus we are left with an autoimmune illness to which no one knows the exact cause, for which there is no cure, and which impacts a part of the body, the CNS, that no one truly understands. I...
Poems to Honor our Myelin
Since joiningΒ Twitter as @MRF_Justine earlier this year, I’ve been challenging all my new followers to write a poem about myelin in 140 characters or less (Twitter’s format.) I’m amazed to see the creations people have come up with. @MSInCT created cool graphics for some of these...
Charles Wienbar is Getting Back to the Top of the Mountain.
When Charles Wienbar was diagnosed with MS in 1994, the scariest thought for him was the possibility that he might end up in a wheelchair. For Charles, that possibility could mean a drastic change in lifestyle; it could mean the end of skiing, mountain biking, running on the beach and hikes in the woods...
Big Ideas to Real Outcomes — BIL:PIL 2009
As we wrote earlier, MRF President Scott Johnson will be speaking at the BIL:PIL 2009 Conference in San Diego, CA.Β (We hope Jonathan has since acquired the lanyards he needs.) BIL:PIL focuses on big ideas everywhere along the healthcare continuum: from medical research to preventative medicine, to...
Our Researchers Want to Hear From You
The MRF will hold its Annual Research meeting in a few weeks.Β Dozens of scientists will fly in from around the country to share their latest research with their colleagues. Our scientists are academic superstars who have devoted their careers to answering the most complex scientific questions about...
Recent Comments