The Myelin Repair Foundation Blog
Where Do Experiments Go to Die?
I met David Alcantara at a Science Commons Salon in Mountain View, CA. He’s the Editor and C.E.O of The All Results Journals a electronic journal that publishes scientific experiments of a different kind. They publish negative results in science, not just positive ones, in order to learn from...
How to create new medicines in the pharmacy
The German journal, Forschung und Lehre (Research & Education), published an article on Scott Johnson’s talks at the Charite Entrepreneurship Summit last month. You can read the German article here or read a translated a portion of article in English below (Thanks to Susan Norris!): Through his...
Meet Steve Wong, Manager of MRF’s Target Validation Work
Last fall, Steve Wong joined the MRF research team to manage the validation of targets identified in our core labs. His background in academic research and commercial biotech, plus his personal commitment to bringing a drug to market make him a perfect addition to the MRF research team. “In the past...
KQED Forum host asked NIH Director: “Where are the Cures?”
Last week, journalist Dave Iverson hosted NIH Director Dr. Francis Collins on the San Francisco-based KQED Forum radio program. Most of the interview focused on the issues surrounding the need to accelerate the development of new drugs and in particular the need to bridge the gap between basic scientists...
PatientsLikeMe Co-Founder Interviews Scott Johnson
The Value of Openness: PatientsLikeMe co-founder James Heywood interviews Scott Johnson on why WhereAreTheCures.org was created. Says Scott Johnson: “I believe the single most rate-limiting factor (slowing the process) is the failure to move promising scientific discoveries made in academic laboratories...
Thank you Colistie & Daymon Worldwide!
When MRF Evangelist, Colistie Harkness, heard about the opportunity in January to give a speech to her colleagues at the Daymon Worldwide’s Charity Showdown she followed her heart and her instincts and volunteered. This Charity Showdown was sponsored by Daymon, to promote their Toastmasters club,...
Dr. Kiki’s Science Hour: New Directions For Multiple Sclerosis Research
MRF’s Director of Discovery Biology Kumar Hari talked about MS and myelin repair on Dr. Kiki’s Science Hour. Listen or watch here. The interview starts at around the 5:00 minute mark.
I Would Run 100 Miles…. for Myelin Repair
One man did and he crossed the finish line on his last race recently. Dennis Smith’s life was affected by multiple sclerosis early on. His father was diagnosed with MS in 1967, before Dennis was born, and spent much of his time in an assisted living facility while Dennis was growing up. Sadly,...
Darla’s Message to MS: “To live with fear is a life half-lived”
I met Darla Bongiovanni in September when she was just starting her first year of classes at SUNY-Purchase in New York. Darla’s not just a undergrad student, she is also musician turned science major who was diagnosed with MS a few years ago. She originally came back to school to get more involved...
“Broken Feather” Supports the Myelin Repair Foundation with Music
Rick Bone and Deb Kelson are two musicians with multiple sclerosis (MS) who recently found the Myelin Repair Foundation on MySpace and on Facebook. Rick was Dx’ed with Relapsing/Remitting MS in 1999 and Deb was Dx’ed in 2004 with Primary Progressive MS. They met on MySpace in a MS support...
Charles Wienbar is Getting Back to the Top of the Mountain.
When Charles Wienbar was diagnosed with MS in 1994, the scariest thought for him was the possibility that he might end up in a wheelchair. For Charles, that possibility could mean a drastic change in lifestyle; it could mean the end of skiing, mountain biking, running on the beach and hikes in the woods...
We are Biotech, Are You?
“I Am Biotech” is donating $25 to a charity for every story they receive from a person working in biotech. One of the charities on their list of recipients is the Myelin Repair Foundation (MRF). If you work in the biotech field (in any type of position) and you want to help speed up...
Investing in patient-focused research
From the beginning, it has been part and parcel of the MRF’s Accelerated Research Collaboration model to make patient treatments the singular focus of all of our work. While this may sound obvious, it is not supported by the culture and mindset of most basic scientists working in university laboratories....
Thank You Wilson Sonsini Goodrich Rosati!
One of the key reasons for the success of the Myelin Repair Foundation’s research efforts is the support we have received from our legal team at Wilson Sonsini Goodrich & Rosati (WSGR). Over the past six years, WSGR has provided the MRF with more than $800,000 in pro-bono legal services. Their...
Volunteer Spotlight: Bob Gregory
Bob Gregory, MRF Area Director Volunteer Bob Gregory was diagnosed with secondary progressive multiple sclerosis in 1990 and has been working for the MRF since 2003 after being attracted by the Myelin Repair Foundation’s ARC(TM) approach to tackling the problems in translational research. Bob is a...
The Beginning of The Ride
Above is a photograph taken by Courtney Carver, dx’ed with MS in 2006. Courtney is a newfound Myelin Repair Foundation supporter who found us online, giving us a call about our MS research and afterwards organizing a fundraiser to donate money for our organization’s research. She has committing...
Volunteer Spotlight: Fred Schwartz
Fred Schwartz, a long-time Myelin Repair Foundation Volunteer Area Director Fred Schwartz was diagnosed with multiple sclerosis in 1994 and has been an MRF volunteer since 2003, one of the very first. Fred learned about the MRF through a Google search like many of our supporters. He then conversed with...
Rachel Quilter, a fighter and inspiration to MS patients
“The present is a present and the past is gone. And the future is an illusion that may never happen. Just know that we are spiritual beings having a human experience.” — Rachel Quilter We at the Myelin Repair Foundation are fortunate to have met many extraordinary individuals committed...
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