The Myelin Repair Foundation Blog
And the winner is…
Jan Christensen for sharing her experience with the Patients Like Me support site after we asked our readers about their favorite patient support community last week: When MS was first mentioned to me, I started to research it on the internet. I found PLM in early 2008. On PLM I learned what to ask...
Our Scientists Behind the Bench
The Myelin Repair Foundation is putting a human face on our medical research by featuring our staff, scientists and volunteers. As a part of this effort, we asked our scientists conducting myelin repair research at our laboratories around the U.S. to tell us a little bit about themselves, what they...
Our Researchers Want to Hear From You
The MRF will hold its Annual Research meeting in a few weeks. Dozens of scientists will fly in from around the country to share their latest research with their colleagues. Our scientists are academic superstars who have devoted their careers to answering the most complex scientific questions about...
Volunteer Spotlight: Justin Owings
Justin Owings (@justinNo), a Myelin Repair Foundation supporter, found me on Twitter due to our shared interest and passion in Vibram Five Finger Shoes and fitness. We ended up chatting more and found more mutual interests — he was intrigued by what the MRF was doing to speed up research for...
GIFT15: A “cure” for multiple sclerosis?
Dr. Julie Stachowiak, Ph.D., the About.com Guide to Multiple Sclerosis author did an excellent job of responding to the recent news item on GIFT15 — a recently touted “cure” for multiple sclerosis. We at the MRF appreciated her measured response and dissection of the science in this...
Kumar Hari, Detective of Our Discoveries
Kumar Hari, Ph.D., Consultant (Grant Management, Discovery Biology & Project Management) Although Kumar Hari, is one of the newest full-time members of the Myelin Repair Foundation team he plays a very critical role in helping us uncover our laboratories’ scientific discoveries that may entice...
CureTogether: Patients working together
This morning I met with the founder of CureTogether, Alex Carmichael, for coffee at Red Rock Cafe in Mountain View, CA. CureTogether is a new patient site that helps an individual track health data pertaining to their conditions/symptoms to make informed treatment decisions and to contribute data...
Seeking a Star Community Liason Intern
This summer the Myelin Repair Foundation was fortunate to host two wonderful interns for our organization, Shivania Bhargava and Katie Pleiss. Both were interested in the applications of digital media in a nonprofit’s communications strategy. Currently we are looking for a fall/spring semester...
The Robert Wood Johnson Foundation: Helping in the fight against multiple sclerosis
From August 2005 to July 2008, the Robert Wood Johnson Foundation (RWJF), an independent philanthropy organization that aims to improve the health and health care for all Americans, provided $1.2 million in funds to the Myelin Repair Foundation. According to RWJF’s 2005 Annual Report, “[T]he...
Michael Pleiss, the MRF Drug Design & Development Doyen
The Myelin Repair Foundation is fortunate to have an all-star research team that can help us translate basic science research into potential drug treatments. A large part of our Accelerated Research Collaboration model’s success is based on our leadership and management of the research process. One...
When will a myelin repair treatment be available?
The Myelin Repair Foundation (MRF) often receives email from MS patients who want to know when a myelin repair drug treatment will be available (or in a clinical trial). We thought it would be helpful to provide some context for our work to identify and validate drug targets and what that means relative...
The New Almaden Music Festival was a success!
Gali Hagel, a long time supporter of the Myelin Repair Foundation attended the New Almaden Music Festival last Saturday with our COO, Rusty Bromley. Both came to help communicate on behalf of our organization and to show support for Rachel Quilter and Tom McQuillen’s work in organizing the festival. Here’s...
Just Take a BIL:PIL
BIL:PIL founder Jonathan Sheffi sat down with us yesterday at the Myelin Repair Foundation offices and gave us the inside scoop. Jonathan Sheffi, Founder of BIL:PIL What follows is an MRF exclusive: “Lanyards,” he said. “We need lanyards and name tags. We hope a pharma company...
How well are your donations to the MRF being spent?
The MRF has always prided itself on maintaining its administrative costs at under 20%. In fact, in the five years since the MRF was founded, 84 cents of every dollar we have received has been dedicated to our research program. This week, the Faster Cures, a Washington, D.C. think tank on accelerating...
Staying Accountable and Transparent in Our Research
GopherTruth, a blogger who is putting pressure on traditional medical research organizations to stay accountable to their donors and their mission, talks about the importance of being transparent with the research that you, as donors, are funding. The traditional investment made by a healthcare charity...
Saturday, Aug 8 – Two fun and exciting fundraising events are afoot!
This upcoming weekend, a couple of Myelin Repair Foundation supporters are putting together fundraising events and everyone is welcome to attend! First off, there is a rockin’ music festival happening in San Jose, CA. It’s called the New Almaden Music Festival that is being organized by Tom McQuillen...
US Agency Appoints New Director of Translational Research
On Thursday, July 30 the National Institute of Neurological Disorders and Stroke (NINDS), a division of the NIH, named William D. Matthew, Ph.D as director of the Office of Translational Research (OTR). Dr. William Matthew According to the NINDS announcement: An untold number of potential therapeutic...
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