The Myelin Repair Foundation Blog
Big Ideas to Real Outcomes — BIL:PIL 2009
As we wrote earlier, MRF President Scott Johnson will be speaking at the BIL:PIL 2009 Conference in San Diego, CA. (We hope Jonathan has since acquired the lanyards he needs.) BIL:PIL focuses on big ideas everywhere along the healthcare continuum: from medical research to preventative medicine, to...
What’s Missing in this Photograph?
Can you find what is wrong in the photo above? As we mentioned in previous posts the Myelin Repair Foundation is committed to focusing its resources on research (spending more than 80% of our funds on research). As a result, for years our office location has not had a sign due to the extra overhead...
Scott Johnson Receives the Dorothy Corwin Spirit of Life Award
Last night, Scott Johnson was recognized by the Southern California Chapter of the National Multiple Sclerosis Society (NMSS) with its Dorothy Corwin Spirit of Life Award. The award was presented at the chapter’s 35th annual Dinner of Champions at the Hyatt Regency Centruy Plaza Hotel in...
A Broader View of Health Care Reform
America’s current debate on health care is pushing a lot of buttons. Who should pay, how much, for whom and for how long? But for those of us living with chronic diseases for which there are few effective treatments or cures there is an equally if not more important question. Where are the Cures?...
The Beginning of The Ride
Above is a photograph taken by Courtney Carver, dx’ed with MS in 2006. Courtney is a newfound Myelin Repair Foundation supporter who found us online, giving us a call about our MS research and afterwards organizing a fundraiser to donate money for our organization’s research. She has committing...
Volunteer Spotlight: Fred Schwartz
Fred Schwartz, a long-time Myelin Repair Foundation Volunteer Area Director Fred Schwartz was diagnosed with multiple sclerosis in 1994 and has been an MRF volunteer since 2003, one of the very first. Fred learned about the MRF through a Google search like many of our supporters. He then conversed with...
Knowing the A-B-C’s of MS
Most MS patients are very familiar with their ABC’s — no, I don’t mean just the alphabet — but the various immunosuppressant drugs that are associated with treating MS. Mike Szymanski from Multiple Sclerosis Examiner recently wrote a synopsis of these drugs: Avonex, Betaseron...
Rachel Quilter, a fighter and inspiration to MS patients
“The present is a present and the past is gone. And the future is an illusion that may never happen. Just know that we are spiritual beings having a human experience.” — Rachel Quilter We at the Myelin Repair Foundation are fortunate to have met many extraordinary individuals committed...
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