The Myelin Repair Foundation Blog
Happy Thanksgiving from the Myelin Repair Foundation
Thanksgiving: a joyous holiday that is today synonymous with turkeys, pumpkin pie, and creating a new belt notch or showing up to dinner in stretchy pants. Outside of its historical and food related connections, the true meaning of Thanksgiving for many lies within its name – giving thanks. For...
Are You an MRF Evangelist?
The interest and support from our social networking communities has been encouraging and rewarding. Your comments, personal donations and the many creative fund raising activities that you have launched on our behalf are nothing short of inspiring. Many of you have asked for tips on how to share...
The Secret Sauce for Identifying High-Risk, High-Reward Experiments
One feature of the MRF’s research model that is not so obvious but is a critical ingredient in the “secret sauce” is the process we use for ensuring that the projects we fund are scientifically sound and are on the cutting edge of myelin research. Unlike the traditional “peer review” model...
What Does an MRF Supporter Want for the Holidays?
Some of our awesome Myelin Repair Foundation supporters helped create this video to share what they want for the holidays with friends and family. Please watch, enjoy and share with your friends and family.
The importance of understanding the mechanics/processes of MS.
In Clayton Christensen’s “Innovator’s Prescription” he highlights a chart which shows a correlation between how treatable common diseases and conditions are versus how much current science understands the disease/condition. Current map of common medical conditions from "Innovator's...
“Broken Feather” Supports the Myelin Repair Foundation with Music
Rick Bone and Deb Kelson are two musicians with multiple sclerosis (MS) who recently found the Myelin Repair Foundation on MySpace and on Facebook. Rick was Dx’ed with Relapsing/Remitting MS in 1999 and Deb  was Dx’ed in 2004 with Primary Progressive MS. They met on MySpace in a MS support...
Seeking a Shorter Path to New Drugs
New York Times reporter Natasha Singer reports on an MIT initiative to streamline drug research. For MIT’s New Drug Development Paradigms program to work “some drug companies that have been fierce rivals will have to play nicer. Think of it not so much as swords into plowshares but as silos...
The winner of the Myelin Poem contest is…
Diane Standiford Diane Standiford from the blog A Stellarlife!  Her winning myelin poem is: Myelin, sweet Myelin Can’t you feel my impulse comin’? My nerves are cold without you Myelin, my leg won’t lift without you Please come back and wrap around Oh, how I miss you, Myelin Diane was Dx’ed with...
MRF Aims for First Phase 1 Clinical Trial in 2014
November 10, 2009 – Saratoga, CA– The Myelin Repair Foundation today released its first five-year report that includes a new set of ambitious goals for the second 5 years of its myelin repair research program. The Promises Made, Promises Kept report summarizes the MRF’s scientific achievements...
Paul Paez: Be Impatient, Unreasonable, and Undeterred
Multiple sclerosis (MS) is a particularly frustrating illness because it affects the Central Nervous System (CNS); thus we are left with an autoimmune illness to which no one knows the exact cause, for which there is no cure, and which impacts a part of the body, the CNS, that no one truly understands. I...
Underpants Gnomes and the Traditional Medical Research Model
The Myelin Repair Foundation participated in the first grassroots organized BIL:PIL conference last week in San Diego. This is an “unconference” where the passionate advocates and entrepreneurs in the health and medical research movement shared ideas & tools, found new collaborations,...
Dr. McFarland: “I had doubts that the MRF would ever be this successful…”
Six weeks ago at our annual research meeting held in Palo Alto, we celebrated five years of progress with nearly 60 scientists including our principal investigators, their lab staff members, members of our Scientific Advisory Board and Drug Discovery Advisory Group and a number of guests including several...
Poems to Honor our Myelin
Since joining Twitter as @MRF_Justine earlier this year, I’ve been challenging all my new followers to write a poem about myelin in 140 characters or less (Twitter’s format.) I’m amazed to see the creations people have come up with. @MSInCT created cool graphics for some of these...
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