The Myelin Repair Foundation Blog

Scott Johnson’s Not Top-Down Solution at BIL:PIL 2009

Thank you to the folks at White Coat Strategies (Emily Deckelman & Cassie Bottge) for donating their time to shoot the video footage, edit the video and then uploading it for everyone to watch. Here is Scott Johnson’s presentation at BIL:PIL 2009 in San Diego this past October.

Dr. Kiki’s Science Hour: New Directions For Multiple Sclerosis Research

MRF’s Director of Discovery Biology Kumar Hari talked about MS and myelin repair on Dr. Kiki’s Science Hour. Listen or watch here. The interview starts at around the 5:00 minute mark.

Roche’s Schwan: “Drugmaking is so crude”

In The Economist’s article  ”Back to the lab” (December 10, 2009,) Roche CEO Severin Schwan acknowledges today’s challenges for the pharmaceutical industry: “Drugmaking is ‘so crude’, Schwan argues, that half of all known diseases cannot be treated at all, and the drugs...

I Would Run 100 Miles…. for Myelin Repair

One man did and he crossed the finish line on his last race recently. Dennis Smith’s life was affected by multiple sclerosis early on.  His father was diagnosed with MS in 1967, before Dennis was born, and spent much of his time in an assisted living facility while Dennis was growing up. Sadly,...

Our Animal Models for Multiple Sclerosis Research

Recently, Dr. Zamboni invited scientists to create new animal models for MS research due to the limitations of the current EAE (experimental autoimmune encephalomyelitis) animal model in answering questions about the efficacy of CCSVI. In June, Rusty Bromley (COO of the Myelin Repair Foundation) responded...

Darla’s Message to MS: “To live with fear is a life half-lived”

I met Darla Bongiovanni in September when she was just starting her first year of classes at SUNY-Purchase in New York.  Darla’s not just a undergrad student, she is also musician turned science major who was diagnosed with MS a few years ago. She originally came back to school to get more involved...

Auction this Week: Get Moving and Bid on this Framed Photograph

We blogged back in September that Courtney Carver, a photographer and cyclist, who was Dx’ed with MS in July of 2006 launched The Ride Project to support the Myelin Repair Foundation. Courtney believes in our unique research model that is solely focused on finding and rapidly delivering treatments...

Thank you, Wheelchair Kamikaze

Thank you to Marc from The Wheelchair Kamikaze for taking the time to meet with Rusty Bromley while he was attending Partnering for Cures last week and for the covering our meeting with him on his blog: The Myelin Repair Foundation-The MRF, also founded by an MS patient, was created to break down the...

The Myelin Repair Foundation’s Views on Chronic Cerebrospinal Venous Insufficiency (CCSVI) & Multiple Sclerosis

The Myelin Repair Foundation shares your optimism surrounding recent observations of malformations in cerebrospinal veins associated with blood flow defects in MS patients. Much of the research has been published by Dr. Paolo Zamboni and colleagues at the Centre for Vascular Diseases, University of...

“Partnering for Cures” bringing diverse interests together

I have been on the steering committee of FasterCures for the last five years. In the past their meetings drew participants from cutting edge medical research foundations who would discuss the systemic challenges in translational research (moving discoveries out of the lab and into the clinic) and share...

Giving Circles: Make More Informed Decisions & Leverage Your Giving

Have you heard of “Giving Circles”? Giving Circles are a growing trend in philanthropy. Basically, it involves pooling together individual’s money and resources to give to selected charities. The benefits are that it allows individual donors to network among themselves, leverage their...