The interest and support from our social networking communities has been encouraging and rewarding. Your comments, personal donations and the many creative fund raising activities that you have launched on our behalf are nothing short of inspiring.
Many of you have asked for tips on how to share our story with others who may be interested in getting involved or making a donation. Since we expect you will be spending time with lots of these folks over the holidays, we hope this post will he helpful.
1. K.I.S.S.—Yes, forgive me but, the Keep it Simple Stupid phenomena applies here.
Keep in mind that it’s likely that your friends, family members and colleagues will find the same features of the MRF attractive as you did. So begin by asking yourself these questions:
What attracted me to the MRF?
How did I find out about it?
What made me want to know more?
Why do I support it?
That’s where to start telling your story.
2. Here’s what we think people need to know about us first and foremost.
The MRF is doing research on new treatments for MS in a new way that is driving new results.
For the most part, the current treatments for MS address the body’s autoimmune response. These therapies work for some, but by no means all patients. The ability to trigger the body’s natural ability to remyelinate nerves in the brain and spinal cord could stop MS in its tracks. We believe myelin repair is THE next generation treatment for MS.
In a new way. The MRF has designed and developed a research model that is accelerating the pace of medical research and driving discoveries into the commercial pipeline. For people living with MS, nothing could be more important.
New results: Five years ago, the ability to repair myelin in animal models was still a mystery. Because of the generous contributions of so many, our scientific team has been able to demonstrate that myelin can be repaired in animal models. This is a first and critical step toward developing new treatments in humans. Download our Promises Made, Promises Kept brochure and share it.
Keep the “buzz” going. And finally keep asking questions and we will do our best to keep answering them.
If you are already an evangelist for the MRF share your favorites stories or conversations you have had with prospective supporters online or in-person in our comment section. We’ll continue to share more ways with you to help spread the message.
[...] Lam in Fundraising, Interviews, Stories, Take Action on Feb 9th, 2010 | no responses When MRF Evangelist, Colistie Harkness, heard about the opportunity in January to give a speech to her colleagues at [...]
Pingback by Thank you Colistie & Daymon Worldwide! | The Myelin Repair Foundation Blog — February 9, 2010 @ 8:06 am
I was diagnosed with MS in 1999. As I have gotten older, I realize more and more that children look through the world with different eyes. As a child, I constantly had pins and needles in my hands and thought everyone felt these things. I have since learned otherwise.
Comment by Nancy Webster — May 3, 2010 @ 7:59 am