News: “By providing incentives for collaboration, the Myelin Repair Foundation model is pointing the way to a new team-based research model that brings treatments from the bench to the patient much faster.” Martin Raff, M.D. Leading Researcher in Developmental Neurology Professor of Biology, University College London
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News Overview

Gaining Momentum

Since its founding in 2004, the Myelin Repair Foundation has gained increasing attention and interest from a broad array of individuals, organizations and the media, both for its focus on myelin repair and on its new research model, which has the potential to change the way all medical research is done.

Media Recognition and Highlights

The Myelin Repair Foundation has been featured in dozens of articles:

  • In September of 2004, then Wall Street Journal reporter Sharon Begley wrote her first story about the Myelin Repair Foundation and its foreshortened research process. Ms. Begley is the first of many reporters who have recognized the unique potential of the Myelin Repair Foundation’s ARC™ model and have covered our work over the past five years.
  • In 2006, Scientific American listed Scott Johnson, President of the Myelin Repair Foundation, as one of 50 leaders worldwide in science, business and policy innovations — recognizing his work on accelerating basic research and drug development.
  • Again in 2006, Fortune Magazine described the ARC model as a “lifesaving shakeup in the world of medical research.”
  • In 2008, Sharon Begley, now the science editor at Newsweek, once again noted the Myelin Repair Foundation’s work as a model for speeding the time to cures: “The pioneering Myelin Repair Foundation, which funds research on treatments for multiple sclerosis, actively manages the five scientists at five universities whom founder Scott Johnson hand-picked, requiring them to share data almost as fast as they collect it, mandating collaboration and pushing discoveries through the valley of death.”
  • In 2009, the Myelin Repair Foundation launched WhereAreTheCures.org, its first patient advocacy initiative designed to educate patients and their families about the roadblocks that are slowing the delivery of patient treatments and to encourage innovation that will accelerate the delivery of patient treatments.

To see all of our press coverage, see our Newsroom page.

Recognition from Other Research Organizations

“The Myelin Repair Foundation’s Accelerated Research Collaboration™ (ARC) model ensures that researchers understand that the true incentive in their work is patient benefit.” Hala Moddelmog, President and Chief Executive Officer, Susan G. Komen for the Cure

More than 70 different disease research organizations including the American Cancer Society, Susan G. Komen for the Cure, the Juvenile Diabetes Foundation and others have expressed an interest in the ARC model and how it might be used to leverage their own investments in research.

Myelin Repair Foundation President and Founder Scott Johnson has been a guest speaker at industry conferences and forums where the ARC model has been showcased for its best business practices.

All of this has created a level of credibility that ensures our supporters and potential supporters of the genuine hope that the Myelin Repair Foundation offers to multiple sclerosis patients and their families, as well as others who seek innovative business models that could translate to faster treatments for all disease.

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